http://www.worldrettsyndrome2008.org/signs-and-symptoms-of-autism-and-autistic-disorders Fri, 18 Jun 2010 02:18:22 +0000 hourly 1 http://wordpress.org/?v=3.0 http://www.worldrettsyndrome2008.org/signs-and-symptoms-of-autism-and-autistic-disorders/comment-page-1#comment-18 SuperDuckyWho Mon, 02 Feb 2009 08:50:30 +0000 http://www.worldrettsyndrome2008.org/signs-and-symptoms-of-autism-and-autistic-disorders#comment-18 That's amazing. My sister has Rett as well but FC was pretty much stopped with her outside of our family when the controversies hit. This would be really neat. That’s amazing. My sister has Rett as well but FC was pretty much stopped with her outside of our family when the controversies hit. This would be really neat.

]]> http://www.worldrettsyndrome2008.org/signs-and-symptoms-of-autism-and-autistic-disorders/comment-page-1#comment-19 luv4mysavior Mon, 02 Feb 2009 08:11:10 +0000 http://www.worldrettsyndrome2008.org/signs-and-symptoms-of-autism-and-autistic-disorders#comment-19 Hello...my 3 1/2 year old daughter has Rett Syndrome. Luckily she doesn't have scoliosis yet. From other parents I have talked to, surgery for scoliosis is somewhat common but I think its mostly done when it is affecting their ability to breathe. The other 2 surgeries I have never heard of being done on girls with RS. My daughter has problems with her ankles that we brace. If there is tightening I have heard of parents trying botox with good results. But sleep apnea is pretty common in RS I think also...yet I have never heard of tonsils being taken out. You have to be VERY careful with surgeries because girls with RS have difficulties with pneunomia, the anesthesia, recovery, and seizures tend to increase with the pain from it. Are you on the Rettnet? If not, that is your best source of answers because it is a huge community of parents, therapists, Drs, etc. That is who you should be asking those questions. You can sign up for it at www.rettsyndrome.org. Best of luck to you and your sister! Hello…my 3 1/2 year old daughter has Rett Syndrome. Luckily she doesn't have scoliosis yet. From other parents I have talked to, surgery for scoliosis is somewhat common but I think its mostly done when it is affecting their ability to breathe. The other 2 surgeries I have never heard of being done on girls with RS. My daughter has problems with her ankles that we brace. If there is tightening I have heard of parents trying botox with good results. But sleep apnea is pretty common in RS I think also…yet I have never heard of tonsils being taken out. You have to be VERY careful with surgeries because girls with RS have difficulties with pneunomia, the anesthesia, recovery, and seizures tend to increase with the pain from it. Are you on the Rettnet? If not, that is your best source of answers because it is a huge community of parents, therapists, Drs, etc. That is who you should be asking those questions. You can sign up for it at http://www.rettsyndrome.org. Best of luck to you and your sister!

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